Dear Friends and Supporters of the CLL Society,
New this week!
Designing the right trials for all patients takes careful planning, deep understanding of where the research is moving and also what the patients need and want. Dr. Wierda discusses his trials at MD Anderson Cancer Center. Watch the interview .
Next in importance to controlling our CLL is rebooting our immune system. Dr. Wiestner from the NIH discussed his research on improving our immunity from ASH 2018 and much more. The CLL Society is particularly interested in this area of research. If you can help, please consider a donation. Watch the interview .
In no particular order, Dr. Koffman listed some of his personal highlights from the 3 day iwCLL biannual meeting in Edinburgh, Scotland. Many more interviews to come.
CAR-T therapy is a great choice for the right CLL patient and now there are 28 sites across the USA offering the trial with JCAR017 including my doctor, Dr. Tom Kipps at UCSD. Read more .
Our own director of the CLL Society Support Network, Terry Evans has been instrumental in helping establish and train facilitators for over 30 support CLL Society groups in Canada and the USA. CURE magazine wanted to hear his story. You can read the interview here .
The CLL Society Tribune has been Released!
The recently released 2019 3rd quarter CLL Society Tribune has several features you might enjoy including Dr. Koffman’s interview with Dr. Jain about the amazing results in his iFCG trial and some helpful and provocative stories including one by Pamela, an OR nurse with CLL and others by Bob and Ryan who offer insights from their journeys, plus an inspirational poem from Mary. Please peruse !
We invite you to attend our CLL Society Webinar
Veterans with CLL: How to Get the Benefits and Care You Deserve
This CLL Society webinar will provide perspectives from a VA physician and a Veteran with a CLL diagnosis. Register here .
Patients and Caregivers Needed for Survey
Liberating Surveys is looking for a total of 27 CLL patients and/ or caregivers to engage in a CLL market research study. Preference will be given to those who can physically attend one of the following sessions:
October 8: Dallas, TX
October 9: Los Angeles, CA
October 28: Manchester, UK
October 29: London, UK
Accommodations may be made for patients and caregivers who are interested but unable to attend in person.
Each participant selected will receive a $200 Amazon gift card in recognition of their time and travel.
CLL Society 2019 Website Survey
We care about what you think. Please let us know what you like and how we can improve the CLL Society’s website and other services by going here .
Expert Access Is Open!
Expert Access, our free online second opinion program is open. If you live in the USA and want a second look at your CLL from a world expert, you are welcome to apply here . Even if you have used the program before, you may reapply if you need new clinical advice.
New Support Groups Forming
There has been interest in forming CLL-specific support groups in new locations! Please click on a link to take our short interest survey if you are interested in attending a support group in one of the following cities:
Ft. Lauderdale / Miami, FL
Fort Worth, TX
Greater Lehigh Valley, PA
Las Vegas, NV
Palm Springs / Coachella Valley, CA
Santa Barbara/Lompoc, CA
St. Louis, MO
Seattle and All Points North
Toronto, ON Canada
Pan Foundation has opened its co-payment assistance program for CLL. To view more information or manage your account, log in to FundFinder.
New LLS Patient Financial Assistance Program
Now open! The Leukemia & Lymphoma Society has a new Patient Financial Assistance program for Blood Cancer patients in active treatment. Learn more about this new assistance program.
Do you shop at Amazon?
Please use smile.amazon.comfor your shopping and a percentage of your purchases today and going forward will be donated to the CLL Society when you select us as your preferred charity. It costs you nothing and helps us.
CLL Society Sponsored Support Group Meetings Coming Up!
The Orange County CLL Support Group – October 8 @ 7:00 pm
Salt Lake City CLL Support Group – October 9 @ 7:00 pm
Long Island CLL Support Group – October 10 @ 6:45 pm
Central Massachusetts CLL Support Group – October 12 @ 12:30 pm
Seattle-Olympic Peninsula CLL Support Group – October 12 @ 1:00 pm
Orlando CLL Support Group – October 12 @ 2:00 pm
Philadelphia CLL Patient Support Group – October 12 @ 2:00 pm
Atlanta Metro CLL Support Group – October 13 @ 2:30 pm
New York City CLL Support Group – October 13 @ 3:00 pm
Toronto CLL Support Group – October 15 @ 7:00 pm
Chicago CLL Support Group – October 15 @ 7:00 pm
Milwaukee CLL Support Group – October 17 @ 6:00 pm
Denver CLL Patient Support Group – October 17 @ 7:00 pm
Twin Cities CLL Support Group – October 17 @ 7:00 pm
New Jersey CLL Patient Support Group – October 17 @ 7:00 pm
Western North Carolina CLL Patient Support Group – October 19 @ 10:00 am
Central Florida CLL Support Group – October 19 @ 10:30 am
West LA CLL Support Group – October 19 @ 11:00 am
Oberlin, OH, CLL Patient Support Group – October 19 @ 1:00 pm
Washington DC-area CLL Patient Support Group – October 19 @ 3:00 pm
DFW – Dallas Area CLL Patient Support Group – October 20 @ 3:00 pm
San Francisco area CLL Patient Support Group – October 20 @ 4:00 pm
City of Hope CLL Support Group – October 21 @ 7:00 pm
SPECIAL ANNOUNCEMENT: The Houston CLL Society Support Group will not be meeting in October.
Visit our website for the most up-to-date information on all CLL Society support group meetings.
CLL Patient and Caregiver Educational Forum, Salt Lake City, UT
Saturday November 9, 2019, 7:30 AM to 12:00 PM at Huntsman Cancer Institute
In partnership with the Huntsman Cancer Institute, the CLL Society invites you to attend our informational CLL Patient Educational Forum. Featured speakers will present the basics of CLL diagnosis, early management, clinical trials, treatment options, patient perspectives, and tips to become an effective self-advocate.
Please see additional information and registration here: https://cllsociety.org/patient-education-forums/
The Leukemia & Lymphoma Society of Canada
Montreal CLL/SLL Support Group – Groupe de soutien de la LLC de Montréal – October 9 @ 6:00 pm
Lymphoma Research Foundation Meetings
Monday, October 28, 2019 from 6:00 PM – 8:30 PM in Boston, MA
The Lymphoma Research Foundation invites you to attend a FREE program: Ask the Doctor About Lymphoma: Updates on Lymphoma and Treatment Options at the Sheraton Boston Hotel featuring Jacob Soumerai, MD from Massachusetts General Hospital Cancer Center. Find out more information and register here .
Leukemia & Lymphoma Society Meetings
Monday, October 21, 2019 from 5:30 PM to 8:00 PM in Newton, MA
LLS invites you to attend this FREE Patient Education Program: Living Well with CLL: diagnosis, treatment and support held at Crowne Plaza Boston, Newton, MA, featuring Jennifer R. Brown, MD, PhD and Josie Bazemore, NP from Dana-Farber Cancer Institute. Dinner will be provided to registered attendees. This event is free but registration is required. Find out more information and register here .
The Florida Society of Clinical Oncology
Thursday, October 10th from 5:00 PM – 9:00 PM in Tampa, FL
Join us for a FREE Chronic Lymphocytic Leukemia (CLL) Patient & Caregiver Educational Dinner Program. Find out more information and register here .