CAR-T is already approved in other blood cancers and more trials are ongoing to expand how it might help patients. Here are three organizations that are providing information and links to raise awareness of CAR-T. There are many others.
American Society of Gene and Cell Therapy: provides CAR-T resources on their patient education site here: http://patienteducation.asgct.org/disease-treatments/car-t-basics.
Their Clinical Trial Finder (https://asgct.careboxhealth.com/) provides an interactive listing of clinical trials for all active and recruiting gene and cell therapies internationally. Please use the “Modality” filter for CAR-T Cell trials, and then “Diagnosis” to search for certain diseases.
BMT InfoNet: provides resource information and support to patients and caregivers before, during and after a bone marrow, stem cell or cord blood transplant, and CAR-T cell Therapy.
The Leukemia & Lymphoma Society’s CAR-T page: http://www.lls.org/CART
Cancer Support Community: provides precision medicine materials and a series for patients entitled “Frankly Speaking About Cancer: CAR-T Cell Immunotherapy.” Please find their:
Quick Guide to eLearning Video: CAR T Cell Therapy
Originally published in The CLL Society Tribune CAR-T Special Edition.