Advocacy

CLL Society was established on the four pillars of education, advocacy, support, and research to equitably meet the unmet needs of the CLL/SLL patient and caregiver community.

For us, advocacy has meant working publicly and behind the scenes to support policies and causes important to those whose lives are touched by chronic lymphocytic leukemia and small lymphocytic lymphoma.

Areas of our advocacy include, but are by no means limited to:

  • Equitable access to care
  • Funding for CLL/SLL research
  • Recognition of the unique needs of the immunocompromised

FEATURE

The National Institutes of Health Now Recognizes Those with CLL/SLL as Being Immunocompromised, Regardless of Treatment Status

Since the start of the COVID-19 pandemic, those with CLL/SLL have been repeatedly denied access to vaccines/boosters, Evusheld, and other life-saving treatments due to the definition of the immunocompromised excluding those with hematological cancers who are not currently undergoing active therapy. Our advocacy team’s countless hours spent on this initiative for more than a year has resulted in a huge and hard-fought with for our community! Read more.

The National Institutes of Health Now Recognizes Those with CLL/SLL as Being Immunocompromised, Regardless of Treatment Status

Since the start of the COVID-19 pandemic, those with CLL/SLL have been repeatedly denied access to vaccines/boosters, Evusheld, and other life-saving treatments due to the definition of the immunocompromised excluding those with hematological cancers who are not currently undergoing active therapy. Our advocacy team’s countless hours spent on this initiative for more than a year has resulted in a huge and hard-fought with for our community! Read more.

CLL Society’s Recent COVID-19 Advocacy Efforts

CLL Society has been working tirelessly behind the scenes on advocacy efforts to encourage government health officials to keep those who are most vulnerable to COVID-19 (such as those with CLL/SLL) in the forefront of their minds when making decisions, especially surrounding testing and therapeutics.
Read more.

ADDITIONAL READING

RECENT NEWS

When appropriate, CLL Society will post updates and background information on the present Coronavirus pandemic focusing on reliable primary sources of information and avoiding most of the news that is not directly from reliable medical experts or government and world health agencies.