CLL Society Expert Access™ Program
We believe that access to CLL expert care is critical for every patient to receive his or her best possible care. Access to a CLL expert provides proven survival and outcomes advantage. In other words, those with a CLL expert as part of their team, live longer than those without this advantage. This program offers patients access to CLL expertise through a HIPAA compliant online video consultation.
Step 1: Confirm that you Qualify
Click the “Get Started” button at the bottom of this page to attest that you meet the criteria. To participate in the Expert Access Program, you must reside in the United States and have a CLL diagnosis, without current access to a CLL expert. If you are unsure if you are already seeing a CLL expert physician, check our list of CLL expert doctors here.
Step 2: Pre-Consultation Survey and Medical Record Release Form
After qualifying for the program, you will be provided a link that takes you to a DocuSign form. Completion of this form is necessary to begin the program. The form includes:
- Pre-Consultation survey.
Your responses to the Pre-Consultation survey will only be reported in combination with all other participants in the program and will not be shared individually.
- Medical Record Release Form.Upon completion, you will receive a copy of the Medical Release form for your records. In preparation for your consultation, your medical records will be summarized and provided to the CLL Expert prior to your consultation. Your medical records will be kept confidential and will not be shared outside the scope of this program.
Again, all information must be completed in order to begin the program.
Once you complete the DocuSign form, you will hear from our partner, InfiniteMD via the email firstname.lastname@example.org.
Step 3: Medical Records Collection
One of the InfiniteMD case managers will reach out to your primary oncologist to collect all of the necessary medical records for the CLL Expert to review. This may take up to 10 days.
Step 4: Scheduling and 30 minute video consultation with a top specialist
Once InfiniteMD obtains your medical records, and summarizes your case, they will send you a few potential time slots to choose from. A 30-minute video consultation will then occur between you and a top CLL specialist. The InfiniteMD platform is very easy to use and available on most internet connected devices. It is preferred to use a device that has a camera to facilitate the video consultation. InfiniteMD can offer tech support if necessary.
Step 5: Post-Consultation Survey and Consultation Summary
Following the consultation, you will be asked to complete a brief survey to help us evaluate the effect of the program. Your survey results will be aggregated with those of other patients and will never be reported individually. You will also receive a summary of your consultation written by the CLL Expert, which you can then share with your treating physician and keep for your own records.
CLL Society has partnered with InfiniteMD, an online second opinion service that uses live, synchronous video technology to match patients around the world with top US-based medical specialists. Eighty percent of those provided a 2ndopinion through InfiniteMD were seeking oncology consultations.
The 2020 CLL Society Expert Access Program is made possible by support from Verastem Oncology (Expert Access Founding Supporter) and Genentech.Get Started