Blogs Archives

November 28, 2023

Art Is Long Life Is Short: What Matters in My and CLL Society’s Work

Hippocrates said: “Art is long, and life is short.” The creation outlives its creator. How does that translate to my work and the work of the CLL Society?

November 27, 2023

Cycle 4, Epcoritamab Trial for CLL / SLL

I have been mostly silent on my blog as there has not been much to report related to my phase 1 clinical trial for my relapsed chronic lymphocytic leukemia (CLL). No news is good news.

October 31, 2023

Cycle 3, Dose 1 Day 4 Epcoritamab Trial for CLL (Chronic Lymphocytic Leukemia): All Good

My last three doses of full-strength epcoritamab (48 mg) have been nonevents. There was some mild fatigue and itching the next day, but there is really nada to report. No cytokine release syndrome (CRS), for sure. All good.

October 13, 2023

GREAT NEWS: Results of Restaging Scans for My Epcoritamab Trial for CLL

I am very close to complete remission, with only one node still greater than 1.5 cm in its longest diameter.

October 12, 2023

Restaging My Chronic Lymphocytic Leukemia (CLL) After Seven Doses of Epcoritamab for My CLL: Your Mileage May Differ

I will soon be rescanned to see if my total of seven doses, with the last three being the full therapeutic dose of 48 mg of epcoritamab, has shrunken my lymph nodes.

October 9, 2023

I Am Not Alone in My Epcoritamab Clinical Trial for My Chronic Lymphocytic Leukemia (CLL)

Despite mild persistent night sweats and disturbed sleep, I am enjoying and learning much at iwCLL (international workshop on CLL) in Boston.

October 9, 2023

Things Are Calming Down in My Epcoritamab Trial for CLL

It’s been a challenging seven weeks since starting my trial of epcoritamab, a bispecific T cell engaging (BITE) monoclonal antibody.

October 3, 2023

Cycle 2, Dose 3 Day 5 Epcoritamab Trial for CLL (Chronic Lymphocytic Leukemia): 98.6°F; It’s Good to Have You Back Again

After seven weeks of cytokine release (CRS) and way too many steroids, I have finally gone almost four days with no fever without the antipyretic benefits of Tylenol or steroids

September 28, 2023

Cycle 2 Dose 3 Day 6 of Epcoritamab Trial for CLL: Has the Fever Finally Broken?

Brian has asked me, again, to update you on his progress with his epcoritamab trial. Until Monday, Brian had a fever every day. He wasn’t on steroids since Sept. 5.

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Blogs

Art Is Long Life Is Short: What Matters in My and CLL Society’s Work

Cycle 4, Epcoritamab Trial for CLL / SLL

Cycle 3, Dose 1 Day 4 Epcoritamab Trial for CLL (Chronic Lymphocytic Leukemia): All Good

GREAT NEWS: Results of Restaging Scans for My Epcoritamab Trial for CLL

Restaging My Chronic Lymphocytic Leukemia (CLL) After Seven Doses of Epcoritamab for My CLL: Your Mileage May Differ

I Am Not Alone in My Epcoritamab Clinical Trial for My Chronic Lymphocytic Leukemia (CLL)

Things Are Calming Down in My Epcoritamab Trial for CLL

Cycle 2, Dose 3 Day 5 Epcoritamab Trial for CLL (Chronic Lymphocytic Leukemia): 98.6°F; It’s Good to Have You Back Again

Cycle 2 Dose 3 Day 6 of Epcoritamab Trial for CLL: Has the Fever Finally Broken?

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