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MARCH 22, 2018
Well it’s done. No looking back.
My genetically altered T cells were infused between 1:56 PM and 2:20 PM Pacific Time. A total of 250 ccs of a slightly whitish liquid.
Like my transplant, the infusion itself was mildly anticlimactic.
No bells rang, at least none in the range that we humans can hear. Maybe at a different frequency there was heard a clarion cry to rest up and get ready for the battle of your life.
Even though I like to frame myself as a hardened scientist, I have to admit that my son, Will’s comic book informs how I think of the whole CAR-T process.
I visualize the battle-ready serial killers resting and growing, stimulated by my CLL tumor burden, to prepare for the upcoming fight.
Labs remain stable. Still tired. Still nauseated, but that is easing.
Off nearly all my meds except for ibrutinib, a higher dose of acyclovir to prevent a herpes zoster infection, and allopurinol to lower uric acid levels when the killing begins in earnest.
Keeping the short as I need to rest.
Today, I have a clear and positive vision of my deep and durable remission from this amazing scientific adventure.
Thanks again for all the support and prayers and well wishes. I can’t tell you how much they all mean.
We are all in this together.
Patty and Me and my CAR-Ts