CLL Society’s Policy Ambassadors program trains patients and care partners to advocate directly with their members of Congress on healthcare policy affecting the CLL / SLL community.
What Is It
A year-long virtual advocacy program connecting participants with their congressional representatives. Now in its second year, the program focuses on building sustained relationships with legislators serving on healthcare committees, ensuring patient voices shape policy decisions.
How It Works
Expert Training & Support: Professional advocacy trainers teach you to share your CLL / SLL story effectively with policymakers. Experts arrange all meetings, join with you virtually, and provide ongoing coaching.
Virtual Meetings: Meet with your congressional representative and staff via video or phone—no travel required. Share how healthcare policies impact your life and why CLL / SLL priorities matter.
Long-Term Impact: Build lasting relationships with your congressional office throughout the year. Return participants deepen their advocacy skills and influence.
Who Should Apply
- CLL / SLL patients or care partners willing to share their story
- Residents of strategic congressional districts (representatives on healthcare committees, we’ll help you determine eligibility)
- Comfortable with virtual communication (Zoom, phone)
- No advocacy experience needed, comprehensive training provided
Time Commitment
A few hours total: initial training session plus periodic virtual meetings with your congressional office.
Why It Matters
Congressional decisions on treatment access, insurance coverage, and research funding directly affect CLL / SLL patients. When legislators hear from constituents, policy becomes personal. Your story creates change.
Next Steps
- Complete the Volunteer Interest Form
- Select “Policy/Advocacy efforts”
- Share your CLL / SLL journey in the comment section
Priority given to applicants in key congressional districts.
If you have questions, please contact [email protected]