CLL Society Expert Access™ ProgramApply Here
We believe that access to CLL expert care is critical for every patient to receive his or her best possible care. Expert access provides a proven survival and outcomes advantage. In other words, those with a CLL expert as part of their team, live longer than those without this advantage. This program offers patients access to CLL expertise through a HIPAA compliant online video consultation.
Step 1: Complete the Online Intake Form
Click the button at the top or bottom of this page and complete the Online Intake Form. You will be able to submit 3 specific questions for the CLL Expert at this time. We will review your application and respond to you via email within 1 week regarding your acceptance in the program. This program is available to patients living within the United States who have not had access to a CLL Expert.
Step 2: Pre-Consultation Survey and Medical Record Release Form
Within your acceptance email, you will be asked to click on a link that will take you to a DocuSign form. It will include:
- Pre-Consultation survey
Your responses to the Pre-Consultation survey will only be reported in combination with all other participants in the program and will not be shared individually.
- Medical Record Release Form. Upon completion, you will receive a copy of the Medical Release form for your records. In preparation for your consultation, your medical records will be summarized and provided to the CLL Expert prior to your consultation. Your medical records will be kept confidential and will not be shared outside the scope of this program.
Completion of both forms is necessary to start the program.
Step 3: Medical Records Collection
One of the InfiniteMD case managers will reach out to your primary oncologist to collect all of the necessary medical records for the CLL Expert to review. This may take up to 10 days.
Step 4: Scheduling and 30 minute video consultation with top specialist
Once InfiniteMD obtains your medical records, and summarizes your case, they will send you a few potential time slots to choose from. A 30-minute video consultation will then occur between you and a top CLL specialist. The InfiniteMD platform is very easy to use and available on most internet connected devices. It is preferred to use a device that has a camera to facilitate the video consultation. InfiniteMD can offer tech support if necessary.
Step 5: Post-Consultation Survey and Consultation Summary
Following the consultation, you will be asked to complete a brief survey to help us evaluate the effect of the program. Your survey results will be aggregated with those of other patients and will never be reported individually. You will also receive a summary of your consultation written by the CLL Expert, which you can then share with your treating physician and keep for your own records.
The CLL Society has partnered with InfiniteMD, an online second opinion service that focuses on using live, synchronous video technology to match patients around the world with top US specialty providers. InfiniteMD has established personal relationships with hundreds of specialists and several large hospital networks, for a specialty physician network well into the thousands. To date, InfiniteMD has performed hundreds of cases for patients around the world. Eighty percent of InfiniteMD’s patients seek second opinion consultation for oncology indications, and 90% of consultations have resulted in changes in treatment recommendations.
The CLL Society is grateful to Verastem Oncology for providing an unrestricted grant to support this important program for CLL patients.Apply Here