Financial Resources
Please find information and resources related to financial assistance, curated by CLL Society. If you see any content that should be updated, please contact [email protected].
Windows of Opportunity
Time-limited Opportunities for Financial Assistance
TotalAssist Financial Assistance Programs
TotalAssist, the charitable patient assistance program of the Patient Advocate Foundation, offers financial assistance to eligible patients living with chronic lymphocytic leukemia (CLL). The CLL fund can help patients pay for eligible out-of-pocket healthcare costs, including medication copays, coinsurance, deductibles, health insurance premiums, and other expenses related to treatment.
Eligible patients with any type of health insurance may receive up to $9,500 in assistance. Eligibility requirements apply, and funding availability can change.
Learn more about TotalAssist’s CLL fund and eligibility requirements.
TotalAssist also offers a Transportation Fund that can help eligible patients with travel-related expenses, including airfare, gas, parking, tolls, car rentals, and lodging. The Transportation Fund is separate from the CLL disease fund and is subject to its own eligibility requirements and funding availability.
Learn more about TotalAssist’s Transportation Fund.
Blood Cancer United (formerly LLS) Financial Assistance Programs
The Blood Cancer United Urgent Need Program provides eligible patients with assistance for non-medical expenses, including rent, mortgage, lodging, utilities, childcare, elder care, food, transportation, car repair, car insurance, phone service, and acute dental work related to treatment.
Learn more about the fund and eligibility requirements here.
The Blood Cancer United Co-Pay Assistance Program may be able to help CLL patients pay out-of-pocket expenses for labs, scans, tests, insurance premiums, and co-pays, whether you are in watch and wait or active treatment.
Learn more about the CLL fund here.
The Blood Cancer United (formerly LLS) Susan Lang Pay-It-Forward Patient Travel Assistance Program is available to blood cancer patients with significant financial need. Those who qualify will receive $500 to cover the cost of treatment-related travel and lodging expenses for the patient and caregiver, including ground transportation; tolls; gas; parking, car rental; car maintenance, repairs, and parts; air transportation; baggage fees; lodging; and ambulance services.
HealthWell Foundation
The HealthWell Foundation is a non-profit organization dedicated to improving access to health care for America’s underinsured. When health insurance is not enough, they fill the gap by assisting with copays, premiums, deductibles, and out-of-pocket expenses.
Learn more about the fund and eligibility requirements here.
Family Reach
Family Reach is a nonprofit organization that provides financial support to patients who reside in the United States and it’s territories and are in active treatment for cancer. When funds are available, they offer grants to help cover nonmedical expenses, including mortgage/rent payments, utilities, groceries, and transportation. There are also grants for disease-specific funds for cancer patients.
Learn more about the fund and eligibility requirements here.
The Assistance Fund
The Assistance Fund provides financial assistance to eligible patients with people with CLL facing high medical out-of-pocket costs by providing financial assistance for their copayments, coinsurance, deductibles, and other health-related expenses.
Learn more about The Assistance Fund’s financial assistance here
Financial Assistance
Nonprofits and Government
Financial support programs from nonprofits and government agencies are constantly changing. The following text was taken from their websites, but it is important to refer back to the sources for the most up-to-date information about pre-requisites and currently available funding. Also keep in mind that most of these sources of funds are means tested—typically, grants are restricted to those with low incomes.
Four types of nonprofits are listed here, in descending order of relevance to those with CLL:
- Blood cancer
- Cancer
- General health
- Government agencies
Financial Assistance
Industry Sponsored
Financial support programs to help pay for drugs from pharmaceutical companies are constantly changing. The following was taken from their websites. It is important to refer back to the sources for the most up-to-date information. Keep in mind that many of these funds are means tested.
Funds may be unavailable to patients enrolled in Medicare or Medicaid.
CLL Society Webinar
Money Matters: Help is There to Prevent Financial Toxicity
Navigating insurance and finding help for medical bills are crucial needs of patients and caregivers. Join us to learn how to be your own self-advocate, insurance basics, costs of medication and in clinical trials, and opportunities to find assistance with hospitals, pharmaceutical companies, nonprofits, and more.
Click here to see the recorded webinar and presentation slides.
Blood Cancer United (formerly LLS) Webinar
Addressing the Financial Impact of Cancer
The topics covered in this webinar include how cancer impacts your finances, health insurance coverage, employment during and after cancer, financial budgeting and resources.
Additional Financial Assistance Resources:
FundFinder
The PAN Foundation’s FundFinder is a free resource to help track whether a patient assistance program and other support services are available. To view more information or manage your account, log in to FundFinder.
Please find the CLL-specific grant webpage for the Pan Foundation .
National Comprehensive Cancer Network (NCCN)
The oncology reimbursement landscape continues to present ever-evolving challenges. As a response, help is available through the NCCN Virtual Reimbursement Resource Room.
