Please find information and resources related to financial assistance, curated by the CLL Society. If you see any content that should be updated, please contact firstname.lastname@example.org.
Windows of Opportunity – Time-limited Opportunities for Financial Assistance
Funds available for CLL patients
The PAN Foundation helps federally and commercially insured people living with life-threatening, chronic, and rare diseases with the out-of-pocket costs for their prescribed medications. PAN’s chronic lymphocytic leukemia (CLL) patient assistance fund can provide up to $8,700 per year in financial assistance to pay for the deductibles, co-pays, and coinsurance costs associated with CLL treatment. Registration and additional information can be found here.
For those currently enrolled in a co-pay or premium disease fund at the PAN Foundation and receiving treatment for that disease, there may be extra assistance for travel related expenses of up to $500 annually available in their PAN Foundation Transportation Assistance Fund.
LLS Financial Assistance Programs
The LLS Urgent Need Program is open. This program provides eligible patients with assistance for non-medical expenses including rent, mortgage, lodging, utilities, childcare, elder care, food, transportation, car repair, car insurance, phone service, and acute dental work related to treatment. Learn more about the fund and eligibility requirements here.
The LLS Co-Pay Assistance Program is open. LLS may be able to help CLL patients pay out-of-pocket expenses for labs, scans, tests, insurance premiums and co-pays, whether you are in Watch and Wait or active treatment. . Learn more about the CLL fund here.
The LLS Susan Lang Pre CAR T-cell Therapy Travel Assistance program is available to CLL patients with significant financial need. The fund provides financial assistance to patients diagnosed with blood cancer who are being evaluated to receive CAR T-cell therapy within a clinical trial. Learn more here.
Financial Assistance – Nonprofits and Government
Financial support programs from nonprofits and government agencies are constantly changing. The following text was taken from their web sites, but it is important to refer back to the sources for the most up to date information about pre-requisites and currently available funding. Also keep in mind that most of these sources of funds are means tested—typically grants are restricted to those with low incomes.
Four types of nonprofits are listed here, in descending order of relevance to those with CLL:
- Blood cancer
- General health
- Government agencies
Financial Assistance – Industry Sponsored
Financial support programs to help pay for drugs from pharmaceutical companies are constantly changing. The following was taken from their web sites. It is important to refer back to the sources for the most up to date information. Keep in mind that many of these funds are means tested.
Funds may be unavailable to patients enrolled in Medicare or Medicaid.
CLL Society Webinar – Money Matters: Help is There to Prevent Financial Toxicity
Navigating insurance and finding help for medical bills are crucial needs of patients and caregivers. Join us to learn how to be your own self-advocate, insurance basics, costs of medication and in clinical trials, and opportunities to find assistance with hospitals, pharmaceutical companies, nonprofits, and more. Click here to see the recorded webinar and presentation slides.
Additional Financial Assistance Resources:
The PAN Foundation’s FundFinder is a free resource to help track whether a patient assistance program is available and other support services. To view more information or manage your account, log in to FundFinder.
HealthWell Foundation helps the underinsured afford critical medical treatments. Learn more and how you can apply here.