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The World’s Leading Authority for Chronic Lymphocytic Leukemia Patients

CLL Patient Surveys

Surveys are your chance to help the community that treats CLL to better understand what is important to the patient and the caregiver. Some are short. Some are long. You may even get paid for doing some of them!

CLL Society wants to hear from you. Part of our organization’s mission is to increase patient education and research. We need your support to increase the body of knowledge for patients and caregivers affected by CLL. Please see current surveys below that help us aggregate information on a variety of topics to inform our field and CLL Society, so we can better serve this community.

FEATURE

CLL Society Community Profile Questionnaire

As a valued member of our community, CLL Society is asking for your participation in completing a profile questionnaire.

All individuals who access the services of CLL Society are encouraged to complete the questionnaire as doing so will aid CLL Society and have benefits for you as well. Please note, a portion of the questionnaire is specifically intended to be answered by those living with CLL / SLL.

Other Research Opportunities


Share Your Experience with Discontinuing BTKi’s

CLL Society is looking for people with experience discontinuing treatment with a BTKi for the survey below. If you have stopped taking a BTKi (such as ibrutinib, acalabrutinib, or zanubrutinib) for CLL or SLL specifically for reasons other than disease progression (such as stopping for side effects, physician or personal preference with either the intent to never take it again or discontinuing for 3+ months) please share your experience through completing this survey. Participation in surveys and research from people like you helps to advance understanding of CLL and the patient journey. We appreciate everyone helping us make a difference for all current and future people affected by CLL or SLL. Complete the survey.

Lymphoma Coalition Global Patient Survey 

Lymphoma Coalition, a worldwide network of patient organizations, has launched its 2024 Global Patient Survey on Lymphomas & CLL. CLL Society is supporting this initiative as a member organization, and we hope you will complete the survey. When people share their experiences, we can make an impact across the healthcare spectrum and bring the voices and values of patients to lymphoma care, research, and health policy. Complete the survey here

Paid Research Opportunities


 

Invivyd’s COVID-19 Prevention and Registry Study

If you have a condition that indicates you are immunocompromised, and you have received a COVID-19 booster vaccine in the last 6-7 weeks, or plan to receive a booster in the near future, you may be eligible for free antibody testing and the opportunity for future participation in COVID-19 prevention studies. Compensation includes a free post booster antibody test and $25 in the form of a virtual gift card. Learn more here.


Are You Receiving Treatment for a Blood Cancer Diagnosis? Join a 20-Week App-Based Wellness Study

Mays Cancer Center is seeking blood cancer patients, ages 18 and up and currently undergoing active treatment, to participate in a National Institutes of Health-funded research study lasting for 20 weeks total.

The purpose of the study is to test an app-based wellness intervention for chronic sleep disturbances among blood cancer patients. We will be asking eligible and consented study participants to use a smartphone-based wellness app for 10 minutes per day for a total of 8 weeks. Additionally, we will ask that study participants complete in-person blood draws and online surveys at 3 different time points over the course of the 20-week study (baseline, after 8 weeks, and after 20 weeks). Finally, we will also ask that study participants wear an Oura Ring daily and complete a brief daily sleep diary for 8 weeks and then again for 1 more week during week 20.

Participants can earn up to $100 for completing all study-related measures. You will need to meet a range of eligibility criteria to be considered eligible to participate in this study. Participation is voluntary.

Complete the eligibility survey here.

If you have questions, please contact by phone (210-450-8253) or email [email protected]

ADDITIONAL READING

A major pharmaceutical manufacturer has commissioned market research to understand the unique issues and concerns of those diagnosed CLL. Your participation in this project will help to expand on new treatments, as well as enhance awareness and improve education about Blood Cancers.
A major pharmaceutical manufacturer has commissioned market research to understand the unique issues and concerns of those diagnosed CLL. Your participation in this project will help to expand on new treatments, as well as enhance awareness and improve education about Blood Cancers.