The CLL / SLL Patient Perspective
Benefit from the real-world experience of fellow patients and caregivers as they share what they learned from participating in clinical trials.
For video testimonials about clinical trials view below.
Christina Rodriguez Fuller – Patient
I was diagnosed in October 2018. My journey led me to a local hematologist, then a CLL specialist in Houston before settling with a CLL specialist in Dallas where I participated in the ECOG trial.
Patient Advice – Paying it Forward – Doreen Zetterlund
My advice is to carefully consider if a clinical trial is right for you when the time comes to treat your CLL / SLL. I’m so glad that I chose the clinical trial route for my frontline treatment
For in-depth information visit these important articles.
Service and Resilience: A Vietnam Veteran’s Journey with CLL
Bruce Wright’s life has been marked by service. A veteran, his journey spans decades from serving in the Navy to battles with CLL and prostate cancer.
Health Pivots, Not Resolutions
When I was diagnosed with incurable leukemia in 1991, I was motivated to learn and to act, but I did not become a health creation machine overnight.
Bruce Wright Shares His Story as a Veteran Living with CLL
Bruce Wright is a US Navy Veteran and is living with chronic lymphocytic leukemia (CLL). Bruce joined multiple podcasts to share stories from his time serving in the Vietnam War, getting exposed to Agent Orange, and raise awareness about CLL and the support he has received from CLL Society.
Completing Time-Limited Therapy
As I finish my year-long, time-limited treatment for chronic lymphocytic leukemia (CLL), I have two questions: When do I celebrate? and What do I call myself?
Cancer Today Magazine: A Can-Do Spirit
Bruce Wright and his wife Elaine were featured in an article and on the cover of Cancer Today Magazine.
Update 8 Years – Captivate Trial
I am pleased to give a 8 year update.
I was first diagnosed in January of 2016. You can see my 3 year article update here. I unfortunately progressed quickly having large lymph nodes and my FISH test revealing 55% 17p deleted and trisomy 12.
CAR-T: A Success Story
By Paul Bildstein – Patient I was diagnosed in 2009 at age 60 with CLL (Trisomy 12, unmutated) after a routine blood test. Initially on watch and wait, I was treated with FCR in 2012. The remission only lasted a year and by then I was also 17p deleted. Ibrutinib
CAR T-Cell Therapy Trial at UCLA Health Did What Years of Other Treatments Could Not for a Non-Hodgkin Lymphoma (NHL) Survivor
CAR T-cell therapy trial at UCLA Health did what years of other treatments couldn’t for a non-Hodgkin lymphoma (NHL) survivor
CAR-T Three Years Later: Dr. Brian Koffman Celebrating a Durable Remission
On March 22, 2018, I was an outpatient at the Seattle Cancer Care Alliance where I was transfused with my own T-cells that had been harvested a few weeks earlier, then genetically reengineered to attack my cancer, multiplied manyfold, then reinjected into my bloodstream to rest up, grow again, and
Update 3.3 Years Mark Hoffman Captivate Trial, 4.3 years with CLL
I am very pleased to report I am still MRD Undetectable (UMRD) in the blood after 3 years on a Placebo in the Captivate clinical trial!! I believe I am in the Placebo arm of a trial, because the Imbruvica side effects totally went away. Imbruvica can have some side effects; my nails and fingertips have gotten so much better!
RECENT NEWS
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