CLL Society
WHAT’S NEW
Your connection to the most current news, information, and data about Chronic Lymphocytic Leukemia.
We suggest you BOOKMARK this page and visit it often. All content was current as of the date it was published.
In science and in medicine, information is constantly changing. Published content may become out-of-date as new information and data emerge.
Living with CLL
If you are a veteran, active-duty military, or a care partner and would be interested in joining a CLL Society Support Group for veterans / active-duty military, please complete this brief survey to indicate your interest in participating and help us identify the best time for meeting.
CLL Advocate Network (CLLAN), a global network of CLL patient organizations including CLL Society, surveyed nonprofits around the world to understand what support services and resources are offered to individuals impacted by CLL / SLL. The information collected was used to build a global resource hub. Patients and care partners can access the resource hub for free on the CLLAN website.
Cancer, CLL, and Mindfulness
When diagnosed with chronic lymphocytic leukemia (CLL), doctors should pause and help patients understand the watch and wait period.
Rebranding Watch and Wait
When diagnosed with chronic lymphocytic leukemia (CLL), doctors should pause and help patients understand the watch and wait period.
Pointers on Doing Your Own CLL Research
The goal of the CLL Treatment Decision Tool is to increase your understanding of your chronic lymphocytic leukemia (CLL) and your treatment options.
I Missed It by That Much: CR but No uMRD by 1 per Million
Testing for measurable residual disease (MRD) through next-generation sequencing (NGS) with clonoSEQ revealed zero to one cell per million in the blood.
WHAT'S NEW IN CLL / SLL
Ambassador Program for Chronic Lymphocytic Leukemia (CLL) Patients
For those living with chronic lymphocytic leukemia or small lymphocytic lymphoma (CLL / SLL), there are a number of treatment options to choose from. When it comes to time to treat, peer-to-peer dialogue can be a highly valuable form of learning and reminds us that we are not alone in this journey.
If you are living with CLL / SLL and considering various treatment options, CLL Society’s Ambassador Program can connect you with a fellow CLL patient who has received the treatment.
ADVOCACY AND POLICY
CLL Society Joins Over 70 Patient Organizations in Support of Legislation Eliminating Barriers to Treatment
CLL Society joined All Copays Count Coalition in supporting the Help Ensure Lower Patient Copays Act to reduce barriers to treatment for chronic illness.
CLL Society Supports Veterans Benefits Administration’s Interim Final Rule Establishing a Presumptive Service Connection for Leukemia Patients
CLL Society advocated for CLL veterans to the VBA on a presumptive service connection for those exposed to particulate matter and diagnosed with leukemia.
CLL Society Joins the Protecting Innovation in Rare Cancers (PIRC) in Educating CMS About Acalabrutinib and Its Therapeutic Alternatives as Agency Prepares for IRA Negotiations
As Inflation Reduction Act negotiations begin, CLL Society is ensuring CMS understands the importance of treatments for CLL patients and physicians.
UPCOMING EVENTS
Friday, May 23, 2025 at 9 AM PT / 12 PM ET
Join CLL Society for our Facebook Live event “Ask Me Anything” featuring Dr. Lindsey Roeker and patient advocate Jeff Folloder. With no prepared presentation, this 60-minute event is truly dedicated to answering your questions. Participation is available over Zoom or Facebook, and we invite you to send questions in advance.
On-Demand Replay
If you missed the recent webinar with Dr. Nitin Jain on CLL / SLL research presented at the ASH 2024 conference, you can catch the replay, presentation slides, and transcript here! Watch now!
If you missed the recent webinar with William A. Werbel, MD, PhD, you can watch the full webinar, Common Infections with CLL: Prevention and Treatment.
If you missed the recent Q&A-style Facebook Live event “Ask Me Anything” Featuring Jacqueline Broadway-Duren, PhD, DNP, APRN, FNP-BC, and Doreen Zetterlund, you can catch the replay here!
Treatment Updates
Hodgkin Lymphoma Transformation in CLL / SLL
Hodgkin lymphoma transformation is a rare type of Richter’s transformation in which CLL / SLL turns into Hodgkin lymphoma rather than DLBCL.
The Role of PD-1 in Chronic Lymphocytic Leukemia
CLL cells express PD-1 when actively growing, and increased PD-1 expression may be an early sign of resistance to BTK inhibitor therapy.
Challenges and Best Practices for Initiating Venetoclax
While time-limited treatment for CLL with venetoclax sounds appealing, its use is low because it is more complicated to start than a BTK inhibitor.
Equitable Access and Regulatory News
Understanding NCCN Guidelines for CLL / SLL as a Patient
NCCN guidelines are the gold standard where CLL experts recommend best practices. Learn what CLL patients should know about the latest update.
