Some of the best advice comes from patients who have travelled this path before you.
Mark Hoffman shares his CLL journey from diagnosis to participating in a clinical trial as a frontline treatment and his current remission. The right steps that helped Mark in his journey were educating himself about the disease, which was aided by joining a support group, advocating for important genetic tests before starting treatment, and getting a second opinion from a CLL expert physician.
If you’d like to learn more about Mark’s story, please read the articles “Patient, Know Thyself” and “Update 3.3 Years Mark Hoffman Captivate Trial, 4.3 years with CLL”.
CLL Society asked ten CLL/SLL patients what advice they have from their own personal journey that they would like to share with people recently diagnosed with CLL.
Although their experiences were different, there was much consensus about what they would recommend to people living with CLL/SLL. This included educating yourself, joining a CLL support group, be prepared at doctor appointments, the importance of Test Before Treat™, get a CLL expert physician on your team, utilize the Expert Access Program™ if you need a second opinion, consider clinical trials, and advocate for your best possible care.
Please find a compilation video of their advice.
To see each individual video, please visit our website here.