Terry Evans is a long-time patient advocate and the facilitator of the Orange County California CLL Society Support Group and the Director of the CLL Society Support Network that oversees over 40 support groups throughout the United States and Canada.
In the article A Leukemia Diary: 24 Years With CLL and Still Playing Golf published by Cancer Health, Terry talks about his 24 year journey in a unique chronological timeline. This article details the major events and the decisions that had to be made in starting and stopping his seven different treatments.
Even though Terry has some of the worst prognostic and genetic markers, his journey shows that the treatments just in the last 10 years have made it possible for even patients like him to still lead a full and productive life.
Terry has proven the importance of educating yourself and being your own advocate. He is also grateful to be able to share his story to give hope to those patients dealing with CLL. His work with CLL Society is an important way that he feels he needs to ‘give back’ to the CLL community.
Terry says, “Life is a blessing, and yes, I have CLL, but I don’t let it control my life.”
Please enjoy his story.
