Most individuals diagnosed with CLL will face a long journey with many treatment decisions. Knowing how to do your own research to understand CLL and other diseases is an essential step in taking control of your health and making informed choices.
Chronic lymphocytic leukemia / small lymphocytic lymphoma (CLL / SLL) is not only a chronic disease but a complicated, heterogeneous (diverse) disease that demands a nuanced and individualized approach.
It demands expertise, and multiple studies have proven that those who see experts live longer. Unfortunately, not every hematologist is an expert in CLL or up to date on current treatment options. CLL Society’s list of healthcare providers can help find an expert near you, or get a free expert second opinion through our Expert Access Program.
Becoming your own expert can feel intimidating; however, Dr. Brian Koffman offers several suggestions in the article, How To Actually Do Your Own Wellness Research by The Good Trade, to help you frame your own research.
If you are reading this, you already have a huge head start on getting your best possible care. CLL Society’s website, educational activities, CareCast podcast, Ask the Expert program, Support Groups, and much more are all great places to start your learning journey.
CLL Society stands behind its motto: Smart Patients Get Smart Care.
