Being Your Own Advocate Archives

April 26, 2023

Decision Making About Treatment of Chronic Lymphocytic Leukemia or Small Lymphocytic Lymphoma (CLL/SLL)

Starting treatment for CLL/SLL requires a complex decision-making process. There are several well-established choices

April 26, 2023

ASH 2022: Dr. Brian Koffman on Understanding Patient Preferences for Chronic Lymphocytic Leukemia (CLL) Treatments

New survey data shows that the most important treatment attribute for patients with CLLis that the treatment increases their chances.

February 23, 2023

Dr. Brian Koffman Discusses Shared Decision Making and COVID-19 Management on the Cancer Buzz Podcast

Dr. Brian Koffman explains why shared decision making is particularly important in CLL/SLL at every decision point throughout the course of the disease, and how the pandemic has radically changed the world for CLL patients.

December 1, 2022

Are We Speaking the Same Language? Insights from a Patient and Provider Survey on CLL (Chronic Lymphocytic Leukemia)

Over the last few years, CLL Society has enjoyed working on several projects with the Association of Community Cancer Centers (ACCC) related to better understanding and improving the quality of care for CLL (chronic lymphocytic leukemia) patients in the community.

October 18, 2022

Dr. Brian Koffman is a Guest on the Healthcare Unfiltered Podcast

The episode discusses the importance of including patients in the process of planning for treatment in CLL/SLL. Also Dr. Koffman provides the patient’s perspective in the conversation and offers advice for how fellow patients can engage in shared decision-making conversations with their healthcare team.

October 3, 2022

Nurses Note: Special Considerations for Those with CLL/SLL When Preparing for Floods and Other Natural Disasters

Our hearts go out to all of those affected by Hurricane Ian last week. Living through floods, fires, earthquakes, tornadoes, hurricanes, and even bad snowstorms are challenging enough. But often we don’t think as much about how to best deal with the aftermath that follows and the sometimes-long recovery

June 23, 2022

The CLL Nurse’s Note: Understanding the Importance of Screening for Skin Cancer While Living with CLL/SLL

Recently, several questions have come into CLL Society from patients who were not aware that CLL/SLL also carries a higher risk of developing secondary cancers, particularly skin cancer.

June 6, 2022

Being Your Own Cancer Advocate

Dr. Koffman also shares the lessons he learned along his battle including how to work with experts and how to be strategic in making choices that have direct impact on your health and well-being.

March 4, 2022

Know Your Options: Cancer Treatment and the Value of Information

Families must research diligently and plan carefully when it comes to covering the costs that come with treatment.

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Being Your Own Advocate

Decision Making About Treatment of Chronic Lymphocytic Leukemia or Small Lymphocytic Lymphoma (CLL/SLL)

ASH 2022: Dr. Brian Koffman on Understanding Patient Preferences for Chronic Lymphocytic Leukemia (CLL) Treatments

Dr. Brian Koffman Discusses Shared Decision Making and COVID-19 Management on the Cancer Buzz Podcast

Are We Speaking the Same Language? Insights from a Patient and Provider Survey on CLL (Chronic Lymphocytic Leukemia)

Dr. Brian Koffman is a Guest on the Healthcare Unfiltered Podcast

Nurses Note: Special Considerations for Those with CLL/SLL When Preparing for Floods and Other Natural Disasters

The CLL Nurse’s Note: Understanding the Importance of Screening for Skin Cancer While Living with CLL/SLL

Being Your Own Cancer Advocate

Know Your Options: Cancer Treatment and the Value of Information

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