Being Your Own Advocate Archives

June 23, 2022

The CLL Nurse’s Note: Understanding the Importance of Screening for Skin Cancer While Living with CLL/SLL

Recently, several questions have come into CLL Society from patients who were not aware that CLL/SLL also carries a higher risk of developing secondary cancers, particularly skin cancer.

June 6, 2022

Being Your Own Cancer Advocate

Dr. Koffman also shares the lessons he learned along his battle including how to work with experts and how to be strategic in making choices that have direct impact on your health and well-being.

March 4, 2022

Know Your Options: Cancer Treatment and the Value of Information

Families must research diligently and plan carefully when it comes to covering the costs that come with treatment.

January 9, 2022

Q&A: Stepping up to the Plate for Chronic Lymphocytic Leukemia

Our own Dr. Koffman’s story as a patient and a patient advocate is told in this Q+A session with questions from some of team at Genentech.

September 27, 2021

Cancer Misinformation and Harmful Information on Facebook and Other Social Media: A Brief Report

What the authors are telling us is that much of the cancer information on social media concerning the four most common cancers (breast, lung, colon, and prostate), is wrong. In fact, about one third of the 200 articles reviewed contained misinformation and 30.5% contained harmful information. And these were

June 11, 2021

How I Proved To Be My Own Best Advocate

The CLL Society has provided me with detailed knowledge about CLL, treatments and a knowledgeable Support Group that is there when I need it.

May 28, 2021

Living with A Rare Cancer – The Mighty Podcast

Mighty host Ashley Kristoff interviews CLL Society’s Support Group Director and 21-year CLL survivor Terry Evans and patient advocate Michele Nadeem-Baker about their experiences with CLL

July 20, 2020

Keeping CLL in Check

Terry Evans, who leads our 3 dozen CLL Society Support and Education Groups in Canada and the USA, has a long story to tell about his chronic lymphocytic leukemia journey and has seen major improvements in CLL treatment over his two decades of dealing with the cancer.

March 20, 2020

Preparations for Doctor Appointments

Brian Maxson, CLL patient, shares his CLL journey, what’s happened so far and what he’s doing with it.

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Being Your Own Advocate

The CLL Nurse’s Note: Understanding the Importance of Screening for Skin Cancer While Living with CLL/SLL

Being Your Own Cancer Advocate

Know Your Options: Cancer Treatment and the Value of Information

Q&A: Stepping up to the Plate for Chronic Lymphocytic Leukemia

Cancer Misinformation and Harmful Information on Facebook and Other Social Media: A Brief Report

How I Proved To Be My Own Best Advocate

Living with A Rare Cancer – The Mighty Podcast

Keeping CLL in Check

Preparations for Doctor Appointments

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