Being Your Own Advocate Archives

March 4, 2022

Know Your Options: Cancer Treatment and the Value of Information

Families must research diligently and plan carefully when it comes to covering the costs that come with treatment.

January 9, 2022

Q&A: Stepping up to the Plate for Chronic Lymphocytic Leukemia

Our own Dr. Koffman’s story as a patient and a patient advocate is told in this Q+A session with questions from some of team at Genentech.

September 27, 2021

Cancer Misinformation and Harmful Information on Facebook and Other Social Media: A Brief Report

What the authors are telling us is that much of the cancer information on social media concerning the four most common cancers (breast, lung, colon, and prostate), is wrong. In fact, about one third of the 200 articles reviewed contained misinformation and 30.5% contained harmful information. And these were

June 11, 2021

How I Proved To Be My Own Best Advocate

The CLL Society has provided me with detailed knowledge about CLL, treatments and a knowledgeable Support Group that is there when I need it.

May 28, 2021

Living with A Rare Cancer – The Mighty Podcast

Mighty host Ashley Kristoff interviews CLL Society’s Support Group Director and 21-year CLL survivor Terry Evans and patient advocate Michele Nadeem-Baker about their experiences with CLL

July 20, 2020

Keeping CLL in Check

Terry Evans, who leads our 3 dozen CLL Society Support and Education Groups in Canada and the USA, has a long story to tell about his chronic lymphocytic leukemia journey and has seen major improvements in CLL treatment over his two decades of dealing with the cancer.

March 20, 2020

Preparations for Doctor Appointments

Brian Maxson, CLL patient, shares his CLL journey, what’s happened so far and what he’s doing with it.

December 8, 2019

4 Tips for Managing the Psychological Impact of CLL

Dr. Koffman offers his best tips for managing the psychological impact of CLL.

August 5, 2019

ASH 2018: Lorna Warwick on the Value of Being a Properly Informed Patients

Lorna Warwick, the CEO of the Lymphoma Coalition (LC), discussed her organization’s research that was presented at ASH 2018. LC is an umbrella organization of nonprofits including the CLL Society that help those with all different types of lymphomas. They used their own and their members’ resources to solicit