Being Your Own Advocate Archives

December 1, 2022

Are We Speaking the Same Language? Insights from a Patient and Provider Survey on CLL (Chronic Lymphocytic Leukemia)

Over the last few years, CLL Society has enjoyed working on several projects with the Association of Community Cancer Centers (ACCC) related to better understanding and improving the quality of care for CLL (chronic lymphocytic leukemia) patients in the community.

October 18, 2022

Dr. Brian Koffman is a Guest on the Healthcare Unfiltered Podcast

Our hearts go out to all of those affected by Hurricane Ian last week. Living through floods, fires, earthquakes, tornadoes, hurricanes, and even bad snowstorms are challenging enough. But often we don’t think as much about how to best deal with the aftermath that follows and the sometimes-long recovery

October 3, 2022

Nurses Note: Special Considerations for Those with CLL/SLL When Preparing for Floods and Other Natural Disasters

June 23, 2022

The CLL Nurse’s Note: Understanding the Importance of Screening for Skin Cancer While Living with CLL/SLL

Recently, several questions have come into CLL Society from patients who were not aware that CLL/SLL also carries a higher risk of developing secondary cancers, particularly skin cancer.

June 6, 2022

Being Your Own Cancer Advocate

Dr. Koffman also shares the lessons he learned along his battle including how to work with experts and how to be strategic in making choices that have direct impact on your health and well-being.

March 4, 2022

Know Your Options: Cancer Treatment and the Value of Information

Families must research diligently and plan carefully when it comes to covering the costs that come with treatment.

January 9, 2022

Q&A: Stepping up to the Plate for Chronic Lymphocytic Leukemia

Our own Dr. Koffman’s story as a patient and a patient advocate is told in this Q+A session with questions from some of team at Genentech.

September 27, 2021

Cancer Misinformation and Harmful Information on Facebook and Other Social Media: A Brief Report

What the authors are telling us is that much of the cancer information on social media concerning the four most common cancers (breast, lung, colon, and prostate), is wrong. In fact, about one third of the 200 articles reviewed contained misinformation and 30.5% contained harmful information. And these were

June 11, 2021

How I Proved To Be My Own Best Advocate

The CLL Society has provided me with detailed knowledge about CLL, treatments and a knowledgeable Support Group that is there when I need it.

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Being Your Own Advocate

Are We Speaking the Same Language? Insights from a Patient and Provider Survey on CLL (Chronic Lymphocytic Leukemia)

Dr. Brian Koffman is a Guest on the Healthcare Unfiltered Podcast

Nurses Note: Special Considerations for Those with CLL/SLL When Preparing for Floods and Other Natural Disasters

The CLL Nurse’s Note: Understanding the Importance of Screening for Skin Cancer While Living with CLL/SLL

Being Your Own Cancer Advocate

Know Your Options: Cancer Treatment and the Value of Information

Q&A: Stepping up to the Plate for Chronic Lymphocytic Leukemia

Cancer Misinformation and Harmful Information on Facebook and Other Social Media: A Brief Report

How I Proved To Be My Own Best Advocate

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