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And so begins a new beginning.

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My hospital stay was delayed a day because there were no beds available. I am still waiting on my trial meds to be delivered.

Once that is certain, I will be premedicated with IV Benadryl and a high dose of steroids to prevent a reaction to the antibodies.

Lots of things to worry about, none of which will happen with the itsy-bitsy dose of epcoritamab that I will receive tonight, the bispecific antibody that I am getting soon, tumor lysis syndrome, infusion reaction, cytokine release syndrome, and neurotoxicity. My test dose is 0.16 mg. The therapeutic dose is 48 mg.

I am more worried about the high dose of steroids than the experimental treatment, at least at this starting dose.

Going to be too dopey to say more soon, so wish me well. Between the steroids waking me up and the Benadryl knocking me down, I will be a bit of a psychological mess for the next few days.

One Response

  1. Wishing you the best,Brian. I’ve been with you from the first days of your struggle. You are a pioneer and so helpful to our community.

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