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Cycle 1, 2nd Dose, Days 5 of My CLL Trial: Sleep, Sweet Nature’s Balm

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There’s not much to report because I essentially napped all day.

I spent most of my day today off steroids, crawling in and out of bed to sleep. The best term to describe my status was that I crashed. Coming off steroids does that to me. And many others.

Though I was up for an hour here and there during the day for meetings and work, I didn’t really get up to stay until 7 p.m. when I pushed myself to take a garden walk before dark.

Hopefully, my diurnal rhythm will get back in line tomorrow, at least until I get the steroid kick again in 3 days. OUCH!

There’s lots of work and overdue self-care on tap for tomorrow.

It’s all worth it for the results I anticipate in my epcoritamab trial for my relapsing chronic lymphocytic leukemia (CLL).

Stay strong. We are all in this together.


Brian Koffman MDCM (retired) MS Ed

2 Responses

  1. Hope you are having a better day today, Brian! And we hope this trial works! Courage! We really are all in this together!

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