CLL Ireland National Information Day
If you are in Dublin on June 8, please join the great group at CLL IRELAND NATIONAL INFORMATION DAY. The event is even being announced on the radio in Dublin. You can listen to the public service announcement here:
In memoriam of Chris Dwyer
Christopher Harington Dwyer, a friend and CLL patient advocate passed on April 15 at his home in Ottawa, Ontario, Canada. He was 73. He will be missed big time, a giant among CLL advocates and a deep well of knowledge and hope for so many of us.
To read more about Chris and Dr. Koffman’s reflections, please see this memorial in CURE magazine.
Article by Dr. Koffman: How a New Cancer Therapy Saved My Life
Dr. Koffman’s op-ed article on how CAR-T therapy give him back his life, was posted on Inside Sources and other online news syndicates recently!
Interview with Brian Koffman at ASH 2018
Deb Simms is a fellow CLL patient, earlier trialist, and advocate for fellow CLLers around the world. Deb leverages her considerable chops as a news reporter to interview me at ASH 2018.
Interview with Dr. Matt Davids
Dr. Matt Davids of Dana Farber Cancer Institute and Harvard Medical School in Boston, MA was interviewed as one of the co-authors of our research presented at ASH 2018 for the Journal of Clinical Pathways (JCP). Read the interview.
Our poster, A U.S.-Based Survey: The Experiences of 1147 Chronic Lymphocytic Leukemia (CLL) Patients, is helping inform clinicians about how to best manage their CLL patients. Together we are making a positive difference. Thanks to all of you who have completed this survey.
Interview with Dr Brian Koffman: It Is Critical That Patients Educate Themselves and Leverage Their Advantages
Dr. Koffman briefly discusses the good and the bad (mostly good) about being a doctor dealing with his own CLL and how we should all leverage whatever advantages we have in this short interview from the American Journal of Managed Care .
Our research in the news!
MedPage is a widely popular and respected site for important medical news.
We are proud and pleased that they decided to include our research as one of the two CLL abstracts they highlighted from the huge ASCO (American Society of Clinical Oncology) 2018 Annual Meeting in Chicago.
What we are doing is making a difference in how CLL patients are treated. Thank you for your support in making it all possible.
Scroll down about ½ way to the Survey of CLL Patient Preference: (https://www.medpagetoday.com/reading-room/asco/hematologic-malignancies/77009) to find the reporting on our research.
Dr. Koffman is the first recipient of the Care Differently Award for Excellence in Patient Support and Education!
We’re very honored and pleased to see our own Dr. Brian Koffman recognized with this award.
Expert Access 2019 Renewal Announced!
We’re so excited to announce along with our partner InfiniteMD our 2019 plans for Expert Access!
CURE Media Group to Honoring CLL Heroes
At ASH 2018, Chris Dwyer, the late Lisa Minkove, Dr. John Byrd and myself are being celebrated as CURE 2018 CLL Heroes. I have to pinch myself sometimes to think where this CLL journey has taken me and the amazing people I have met along the way including all those being honored by CURE.
Expert Access featured in the News
We are so proud of our CLL Society Expert Access program ability to offer free expert to patients who would otherwise lack such care. The program is increasingly being recognized for the breakthrough in using the best best minds and the best tech to improve patient outcomes.
An Interview with Dr. Furman
Dr. Furman is know for his pioneering CLL research, his dogged insistence on getting the details right, and his generosity in answering so many CLL patients’ questions. We were therefore pleased to sees that he list the CLL Society as a go to source for quality up to date CLL Information.