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CLL Testing & Imaging

Real-World Testing Patterns for Risk Assessment and Implications on the Adoption of Novel Therapeutics in Chronic Lymphocytic Leukemia/Small Lymphocytic Lymphoma (CLL / SLL): IgHV Mutation Status, FISH Cytogenetic, and Immunophenotyping
As new and better treatments are developed to treat Chronic Lymphocytic Leukemia, and Small Lymphocytic Lymphoma (CLL / SLL), testing for subtypes of the disease is becoming more important for prognosis and selection of the best treatment options.
Patient, Know Thyself
Patient, Know Thyself Mark Hoffman is a long-time CLL patient advocate and facilitator of the CLL Society Patient & Caregiver Support Group in San Diego, CA. In this article from Cancer Health, Mark echoes the importance of the Test Before Treat™ campaign by sharing his story. When Mark was
CLL Society On Demand Ed Forum: ASH 2020 Comes to You – Session 1: Encouraging Updates on Drugs in Development + the Sad State of Test Before Treat
CLL Society On Demand Ed Forum: ASH 2020 Comes to You – Session 1: Encouraging Updates on Drugs in Development + the Sad State of Test Before Treat Recorded Thursday, February 4, 2021 https://youtu.be/U9f7OCdcJcs Continue to Session 2: CLL Treatments: Chemotherapy, Immunotherapy, and Targeted Agents CLL Society Resources Download
David’s Story
(Expert Access & Test Before Treat™) This is just a brief note to tell you about the important impact you had on my treatment for CLL. Last November, through the Expert Access program sponsored by the CLL Society, you were kind enough to review my medical records and chat
Michelle’s Story
When I was first diagnosed in April 2018, my WBC was at 55k, my local Hematologist performed the FISH test and found out I had 11Q with loss of ATM, they told me that only made a difference in the type of treatment I would need and I probably
Heather’s Story
Diagnosed Aug 2018 as a 54-year-old female, with SLL via node biopsy. CT showed extensive lymphadenopathy, very bulky disease, particularly in mesentery. Bloodwork all in normal range. Had BMB in spring 2019 for purposes of FISH. Had been experiencing increasing fatigue and discomfort in gut. Pathologist decided not to

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CLL Society Inc. is a patient–centric, physician–curated nonprofit organization focused on patient education, support, and research. Dedicated to addressing the unmet needs of the chronic lymphocytic leukemia (CLL) and related blood cancer communities, we explain the rapidly changing therapeutic landscape and the importance of clinical trials, support and build patient networks, engage in research, and educate providers and patients.

CLL Society is a registered 501(c)(3) tax-exempt nonprofit organization. All donations are tax-deductible to the greatest extent as allowed under federal law. CLL Society’s tax ID number is 46-4131354.

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Newsletter
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